Canada and All Other Countries
United States Title: History, Genetics, Myths & Health Care
Subtitle:
Author(s):
Lola Akinola Olatunji
Date:
January, 2011
Pages:
1
Summary:
A FOUR PART documentary about albinism in Africa by Lola Akinola Olatunji, PhD student & person with albinism (PWA), born in Nigeria and now a resident of the UK.
Note: This doc is very informative but has modest technical production quality.
PART #1 – FOCUS: Genetics & History
Interviews with:
- Dr. Richard King , Professor of Genetics, U of Minnesota – Describes the genetics of albinism
- Dr Patricia Lund, Geneticist, Coventry University – Describes the genetics of albinism more thoroughly using the AA - Aa – aA – aa illustration
- Thomas White, Historian on Albinism, U of Manchester – Describes the genesis of the study & diagnosis of albinism
PART # 2 – FOCUS: Myths & Health Care (Eyes & Skin)
Interviews with:
- Dr Patricia Lund, Geneticist, Coventry University – Describes the uniqueness of the eye for PWA.
- Uses footage from Discover Education to show the function of the eye
- Reshma Kukadia, Optometrist, Campus Vision – Addresses low vision for PWA using Lola as a patient.
- Dr Roberto Verdolini, Dermatologist, London Dermatology Center - Describes skin, melanin and the uniqueness of PWA skin condition & sunscreen using helpful visuals.
PART #3 - (14 min) FOCUS: Orgs giving aid to PWA / schooling of PWA in Africa (sunscreen issues / urban vs. rural issues)
Interviews with:
- Boniface Massah, TAAM (albino assoc of Malawi), Specialist on Public Healthcare – Difficult to understand
- Jenny Walker, Southern Africa’s Children, Tanzania – work with children who are disabled, orphaned. One project is with HIV orphans in Shinyanga, Tz. One is with children with albinism on Ukarar Island on Lake Victoria, Tz..
- Dr Patricia Lund, Geneticist, Coventry University – Various Schooling models in South Africa, Zimbabwe, Malawi.
PART # 4 – (14 min): Interview with DIANDRA FOREST, a PWA model from New York
FOCUS: Beauty, self esteem, and life experience as a PWA before being a model & now.
Link:
Type:
Academic
Source:
Keywords:
History, Genetics, Myths, Health Care, Albinism
field_resource_pdf:
Title: Hocus Pocus, Witchcraft, and Murder:
Subtitle:
The Plight of Tanzanian Albinos
Author(s):
Alum, Alexander, Gomez, Michael, Ruiz, Edilsa
Date:
May, 2009
Pages:
59
Summary:
On the witchcraft-related massacre of persons with albinism in Tanzania, the discrimination against the same and some recommendations on how this issue might be resolved.
Link:
Type:
Academic
Source:
International Team Project, Northwestern University School of Law, 2009, 9.
Keywords:
Albinism; Tanzania; Witchcraft; Killings; Disability; Human Rights; International Community; Legal; Laws; International Conventions.
Title: Magic, Mutilation, and Murder: A Case for Granting Asylum to Tanzanian Nationals with Albinism
Subtitle:
Author(s):
Stacey Larson
Date:
Pages:
28
Summary:
"This paper argues that the continuing cruel, inhuman, degrading, and discriminatory treatment of Tanzanian nationals with albinism (hereinafter “Persons with Albinism” or “PWAs”) constitutes persecution under American asylum law and that these individuals who face or fear such treatment on account of their disability, albinism, should presumptively be entitled to eligibility for asylum in the United States (“U.S.”)." The paper provides a framework for fulfilling the necessary requirements in applying for asylum should PWAs choose to seek it.
Link:
Type:
Academic
Source:
Keywords:
asylum, Tanzania, refugee, law
field_resource_pdf:
Title: Myths, Discrimination, and the call for Special Rights for Persons with Albinism in Sub-Saharan Africa
Subtitle:
Author(s):
Muthee Thuku
Date:
January, 2011
Pages:
24
Summary:
This paper looks at the myths surrounding albinism and the resulting discrimination. In response to these vices, it proposes some special rights that states in Africa should implement with regards to health, education, livelihood,
safety and security of the person and the general welfare of persons with albinism.
Link:
Type:
Academic
Source:
Keywords:
Myths, discrimination, albinism, rights, Africa
field_resource_pdf:
Title: Oculocutaenous Albinism
Subtitle:
Author(s):
Biswas S., , Lloyd, I.C.
Date:
May, 1990
Pages:
5
Summary:
Oculocutaenous albinism (OCA) generally affects hair, skin and eyes. However, the physical manifestation varies in each person with albinism. The degree of depigmentation that the condition generates also varies in each person. This article provides technical differences in types or forms of albinism.
Link:
Type:
Academic
Source:
Archives of Disease in Childhood, 80, 565 - 569.
Keywords:
Albinism; Oculocutaenous albinism; Types; Appearance and effects; Technical aspects
field_resource_pdf:
Title: Oculocutaneous Albinism
Subtitle:
Author(s):
Biswas, S. , Lloyd, I.C.
Date:
January, 1999
Pages:
6
Summary:
A detailed overview of ocolocutaneous albinism and its common characteristics. Most of these characteristics are explained in terms of their scientific origins and apparent manifestation in persons with albinism.
Link:
Type:
Academic
Source:
Archives of Disease in Childhood, 80, 565-569.
Keywords:
Albinism; Albino; Origin; Science; Melanin
field_resource_pdf:
Title: Oppression Through Omission:
Subtitle:
The Human Rights Case of Persons with Albinism in Uganda
Author(s):
Allen, Kelly
Date:
December, 2009
Pages:
25
Summary:
The challenges that persons with albinism face in Uganda; and the inadequacy of current international Law and Convention in protecting persons with albinism in sub Saharan Africa.
Link:
Type:
Academic
Source:
PhD Thesis, Development Studies, Kampala, Uganda, Spring 2010. School for International Training (SIT) P.O. Box 676, 1 Kipling Road Brattleboro, VT 05302 USA
Keywords:
Albino; Albinism; Uganda; east Africa; international law and convention; Human Rights.
field_resource_pdf:
Title: Prevalence of albinism in the South African Negro
Subtitle:
Author(s):
Kromberg, Jennifer G.R., Jenkins, T
Date:
March, 1982
Pages:
4
Summary:
In Soweto, South Africa, the prevalence of persons with oculocutaenous albinism was found to be approximately 1 out of every 3,900 persons. The carrier rate is found to be as high as 1 out of every 32 persons. A comparative rate of prevalance among tribes within South Africa is also presented.
Link:
Type:
Academic
Source:
SA Medical Journal, 13 March 1982.
Keywords:
Albino; Albinism; South Africa; Black; Prevalance; Frequency; Occurrence.
field_resource_pdf:
Title: Psychological Aspects of Albinism:
Subtitle:
An Exploratory Study with Nigerian (Igbo) Albino Subjects
Author(s):
Ezeilo, Bernice
Date:
May, 1989
Pages:
3
Summary:
Some common psycho-social issues that persons with albinism are confronted with in society. Subjects are 3 persons with albinism from the Igbo tribe of eastern Nigeria.
Link:
Type:
Academic
Source:
Social Science & Medicine, Vol.29, No. 9 pp. 1129 - 1131, 1989.
Keywords:
Albino; Albinism; Nigeria; Igbos; University; Students; Psychology; Pscyhological aspects.
field_resource_pdf:
Title: Reconsidering Witchcraft:
Subtitle:
Postcolonial Africa and Analytic (Un) certainties
Author(s):
Sanders, Todd
Date:
October, 2003
Pages:
15
Summary:
On the rise of witchcraftt in post-colonial Africa as a means of coping with the values and attributes of capitalism including wealth, and materialism.
Link:
Type:
Academic
Source:
American Anthropology, 105(2): 338 - 352.
Keywords:
Witchcraft; Africa; Capitalism; Tradition
field_resource_pdf: