Oculocutaneous Albinism
A detailed overview of ocolocutaneous albinism and its common characteristics. Most of  these characteristics are explained in terms of their scientific origins and apparent manifestation in persons with albinism.
Biswas, S. , Lloyd, I.C.
6
Albinism; Albino; Origin; Science; Melanin
Archives of Disease in Childhood, 80, 565-569.
Oppression Through Omission:
The Human Rights Case of Persons with Albinism in Uganda
The challenges that persons with albinism face in Uganda; and the inadequacy of current international Law and Convention in protecting persons with albinism in sub Saharan Africa.
Allen, Kelly
25
Albino; Albinism; Uganda; east Africa; international law and convention; Human Rights.
PhD Thesis, Development Studies, Kampala, Uganda, Spring 2010. School for International Training (SIT) P.O. Box 676, 1 Kipling Road Brattleboro, VT 05302 USA
Our Biggest Fear is Living, Albinos Cry
On the effect of muti killings and occult-related killings on the continent of Africa. The effect of such killings on children and persons with albinism. Cases in point: Nigeria, and Tanzania
Daily Monitor
Albino; Muti; Occult; Killings; Children; Africa; Nigeria; Tanzania.
 Daily Monitor. Accessed September 5, 2010
Pictures: Inside the Lives of Albinos in Tanzania
A beautiful collection of pictures with accompanying stories about the lives of persons with albinism in Tanzania.
Jacquelyn Martin
9
Photographs; Tanzania; Albinism
National Geographic
Prevalence of albinism in the South African Negro
In Soweto, South Africa, the prevalence of persons with oculocutaenous albinism  was found to be approximately 1 out of every 3,900 persons. The carrier rate is found to be as high as 1 out of every 32 persons. A comparative rate of prevalance among tribes within South Africa is also presented.
Kromberg, Jennifer G.R., Jenkins, T
4
Albino; Albinism; South Africa; Black; Prevalance; Frequency; Occurrence.
  SA Medical Journal, 13 March 1982.
Psychological Aspects of Albinism:
An Exploratory Study with Nigerian (Igbo) Albino Subjects
Some common psycho-social issues that persons with albinism are confronted with in society. Subjects are 3 persons with albinism from the Igbo tribe of eastern Nigeria.
Ezeilo, Bernice
3
Albino; Albinism; Nigeria; Igbos; University; Students; Psychology; Pscyhological aspects.
Social Science & Medicine,  Vol.29, No. 9 pp. 1129 - 1131, 1989.
Reconsidering Witchcraft:
Postcolonial Africa and Analytic (Un) certainties
On the rise of witchcraftt in post-colonial Africa as a means of coping with the values and attributes of capitalism including wealth, and materialism.
Sanders, Todd
15
Witchcraft; Africa; Capitalism; Tradition
American Anthropology, 105(2): 338 - 352.
Regional Parliament Decries Albino Killings
Members of the East African Legislative Assembly (EALA)  including Tanzania, Uganda, Kenya, Burundi and Rwanda push for concerted efforts to curb albino killings through the prosecution of killers in the region.
Ubwani, Zephania
Albinio; Albinism; Killings; East Africa; East Africa Legislative Assembly; Interpol; East Africa Community
United Nations Association of Tanzania. Accessed July 28, 2010.
Rise in African Children Accused of Witchcraft
A report produced by the United Nations Children's Fund cites the growing trend in the accusation of children as witches in parts of Africa. Some of these children are being tortured and murdered as a result. This is explained as a relatively new trend linked to urbanization and war.
BBC News
Witchcraft; UN; Africa; Children.
BBC News. Accessed July  21, 2010.
Salif Keita Brings "La Difference" to Dar Es Salaam
Salif Keita, the acclaimed international musician with albinism who is originally from Mali performs a concert in Dar Es Salaam, Tanzania, in the protest and awareness of the killings of persons with albinism.
All Africa.com
Salif Keita; Dar Es Salaam; La Difference; Music; Concert.
All Africa.com. Accessed October 16, 2010.
Senegal: Albinos Face Perilious Social Rejection
Persons with albinism in Senegal decry harsh social treatment and stigmatization that leaves most of them destitute and in dire straits. The Senegalese National Albino Association and the Senegalese Ministry for Family strives to improve their plight but faces difficult financial constraints.
IRIN (United Nations)
Albino; Albinism; Education; Senegal; Senegalese National Albino Association; Stigmatization; Health; Skin Cancer; Government response.
Integrated Regional Information Networks (IRIN). Accessed July 28, 2010.
Sir Archibald Garrod’s “Inborn Errors of Metabolism”
A bio-chemical survey on the manifestation  and absence of melanin or pigmentation in humans.
Knox, Eugene
19
Albinism; Biology; Bio-Chemistry; Chemistry; Melanin; Pigment
The American Journal of Human Genetics,  Vol. 10 No. 3,  2003,  277- 296
Skin Cancer in African Albinos
Skin pigmentation and environmental factors probably account for the difference in skin cancer types between Africans and Caucasians. This study reports on malignant skin tumors found in normally pigmented as well as persons with albinism as seen in a hospital in Zaria, Nigeria. In the result, persons with albinism in Nigeria are said to have a lifespan of a bout 30 years.
Yakubu, Alkassim, Mabogunje, Oluwatope
Albino; Albinism; Skin cancer; Nigeria; Pigment; Life span.
Acta Oncologica, Vol. 32, No. 6, pp. 621-622. 1993.
Skin Cancer:
Shagari Makes Case for Albinos
At thr 4th national conference on albinism in Nigeria, statesmen, including former head of state, S. Shagari, urged for more government action for the prevention of skin cancer in persons with albinism.  Albinos in Nigeria are said to have suffered "untold neglect and discrimination over the years."
Aminu, Mohammed
Albino; National Conference; Nigeria; The Albino Foundation; Skin Cancer; Ignorance
This Day (Nigeria). Accessed july 30, 2010.
Skin cancers in albinos in a teaching Hospital in eastern Nigeria - presentation and challenges of care
Study of cancer rates in persons with albinism  at Imo State University Teaching Hosptial between 2007 and 2009. Study revelaed that 67 percent of primary skin cancers recorded there were in persons with albinism. 61 percent of skin cancer patients where also less than 40 years of age.  Late presentation and poor rate of completion of treatment due to poverty, were major challenges to patient care.
Opara, Kingsley, Jiburum, Bernard
Albino; Mariamu Staford; Prosthetics; ABC News; 20/20.
7th Space Interactive - Credit Source: World Journal of Clinical Oncology, 2010, 8: 73. Accessed September 5, 2010.
Southern Africa:
Too White to Be Black - The Challenge of Albinism
Persons with albinism in Southern Africa: Zimbabwe, Malawi, and South Africa express similar challenges around social stigmatization, misconceptions, and health issues especially skin cancer.
IRIN (Integrated Regional Information Networks (United Nations)
Albino; Albinism; Zimbabwe; Southern Africa; Malawi; Stigmatization; Zimbabwe Albino Association (ZIMAS); Prof. John Makumbe; Health; Human rights.
IRIN. Accessed July 29, 2010.
Studies on Albinism in the South African Negro
28 albino subjects tested for intellectual maturity and body image perception. Results are compared with a control group of non-albino South Africans
Jenkins, Trefor, Kromberg, Jennifer , Manganyi, Noel
6
Albino; Negro; African; Intellect; Intelligence; Body Image;  Oculocutaneous; South Africa
Journal of Biosocial Science 6 (1974): 107 - 112
Surprise of Tanzania's albino MP
Ms. Al-shymaa Kway-Geer, a Tanzanian woman with albinism, is appointed as a Member of the  Parliament of Tanzania by President Jakaya Kikwete. Ms. Kway-Geer cites the education and health needs of persons with albinism in the country and looks to use her appointment to help the plight of this group.
BBC
Albino; MP; Member of Parliament; KweY-Geeir; Alshymaa; Killings; Tanzania; Government.
BBC: Accessed July 28, 2010.
Swaziland: Trade in Albino Body Parts Moving South
In the wake of the killing of Banele Nxumalo in Swaziland, IRIN reports that the killings are muti-related and likely directed at creating potions to combat ailments such as HIV which is common in Swaziland
IRIN
Albino; Killings; Swaziland; Banele Nxumalo; Muti.
IRIN: Accessed September 5, 2010
Taking a Stand Against Discrimination
2 German Ministers, Ministers Westerwelle and Niebel, visit the Ocean Road Hospital, Dar es Salaam, Tanzania. The hospital is the only cancer clinic in Tanzania. Here they give a gamma camera for detecting tumors to a person with albinism. They also visit members of the Tanzania Albino Society to show awareness and solidarity in the wake of the recent atrocities against persons with albinism.
Auswartiges Amt - The Federal Foreign Office of Germany
Albino; Albinism; Tanzania; Germany; Government; Ocean Road Hospital; Skin Cancer.
Auswartiges Amt - The Federal Foreign Office of Germany. Accessed July 28, 2010.
Tanazania:
East Africa's Albino Underworld
Vicky Ntetema of the BBC tells how she brought international attention to the issue of killings of persons with albinism in Tanzania and east Africa. A summary of the intricacies of the macabre trading of albino body parts and similar atrocities commited towards persons with albinism in other parts of Africa is presented. The responses of international and other development non-governmental organizations such as Under The Same Sun are briefly discussed.
Jody Ray Bennet
Albino; Albinism; Witchdoctor; killings; body parts; Africa; Vicky Ntetema.
NGO News Africa. Accessed July 28, 2010
Tanzania Fear Over Albino Killing
Report comments on 4 killings of persons with albinism over 3 months in 2007. An albino spokesman laments government's in-action and lack of response. The BBC's Vicky Ntetema confirms fear of attack in the albino community.
BBC
Tanzania; Killings; Government.
BBC News. Accessed July 23, 2010
Tanzania Fights Human Skinning
An exhibition showing human body parts and skin is launched in Dar es Salaam Tanzania in an effort to discourage and bring awareness to the growing use of body parts in witchcraft rituals in the country.
BBC News
Witchcraft; Tanzania; Exhibit; Skin; Human Organs; Exhibition
BBC News. Accessed July 21, 2010
Tanzania in Witchdoctor Crackdown
President Kikwete of Tanzania orders crackdown on those witchdoctors that are involved in the use of body parts of persons with albinism in making potions calling it "sensless cruelty.
BBC
Albino; Albinism; Tanzania; Witchdoctor; President Kikwete; Government.
BBC. Accessed July 27,2010.
Tanzania suffers rise of witchcraft hysteria
On the growing rise of deaths and physical maiming related to witchcraft in rural Tanzania and the government's lack of response to this growing trend.
Duff, O.
Witchcraft; Tanzania.
The Independent (London). Accessed, July 12, 2010
Tanzania to Hang Blood-Drinking Killer of Albino Girl
The High Court of Mwanza, Tanzania convicts 50 year old, Kazimiri Mashauri in the brutal murder of a 5 year old girl with albinism. This case is the second murder conviction arising out of the recent killings of persons with albinism in the country.
Ng'wanakilala, Fumbuka
Albino; Killing; Court; Justice; Death Sentence; Hanging; Tanzania.
Reuters (Dar es Salaam). Accessed July 28, 2010.
Tanzania's Albino Murder Crisis
In the wake of the recent atrocities against persons with albinism based on the belief that magical potions made with the organs of persons with albinism will bring wealth and success, some persons with albinism have formed a soccer team - "Albino United "- to show in their own way, that persons with albinism are humans too.
Channel 4
Albino; Albinism; Tanzania; Myths.
Channel 4 (U.K.).
Tanzania:
albinos are “a walking deal”
On the on-going kilings of persons with albinism in Tanzania. The role that Red Cross is playing: setting up a fund to alleviate the issue and assit the victims. Highlights commetns from Rukia and Fatuma who are victims of an unsuccessful attack. Also comments from Hamis Ngomera of the Tanzania Albino Society.
Wanjiru, Anne
2
Tanzania; Killings; Rukia; Fatuma.
The International Federation of the Red Cross and Red Crescent Societies. Accessed July 23, 2010.
Tanzania: Living in Fear: Daylight Provides no Protection for Albinos
Persons with albinism suffer from the harsh sunlight in Tanzania and other African countries. Lack of education force many Tanzanian persons with albinism to work outside of buildings - on farms for example. Lack of education on the need to use sun screen and/or sun protective clothing further complicates the danger posed by the sun on this group of persons.
Wanjiru, Anne
Albino; Albinism; Tanzania; Ocean Road Cancer Institute; Skin Cancer; Tumor; Lifespan.
International Federation of the Red Cross and Red Crescent Socieites (IFRC). Accessed, July 29, 2010.
Tanzanian 'Witch Killers' Charged
20 people in Tanzania are charged with the murder of 7 men who they had accused of practicing witchcraft.  A secret ballot had been conducted in which the names of alleged witches and wizards were deposited. The accused witches and wizards were threatened to leave the area or face the "consequences." Those who organized the murder of the 7 included village officials and prominent personalities in the area. Report also  shows that the use of, and trade in human organs is becoming more common place in some parts of the country.
Ntetema, Vicky
Witchcraft; Tanzania; Human organs; Justice.
BBC. Accessed July 29, 2010.
Tanzanian Woman With Albinism Gets New Arms
On the help afforded to Mariamu Staford, the 28 year old Tanzanian woman with albinism who lost both of her arms to a brutal attack. This is the story of her new prosthetic arms, and how she intends to use them.
Diaz, Joseph
Albino; Mariamu Staford; Prosthetics; ABC News; 20/20.
ABC News: Accessed September 5, 2010
The Fetishization of Albinos in Tanzania
From abstract: "While rumors of organ stealing and the efficaciousness of albino body parts have been going on for a long time in Tanzania, there seems to be a recent spike in the killing of albinos. These killings are an intensification of an old story that began in pre-colonial Central Africa. People materialize and utilize fetishized notions of the productive magic of albino body parts. The consumption of magical paraphernalia supposedly made from albinos’ bodies is imagined to counteract the decline of the fishing industry. The story of albino killings is about the fantastic speculation of value, and this value supports the localized economy. This illustrates the desire to create and sustain specific market commodities out of albino body parts. Some say this is a story about the economy, the neoliberal, or a functionalist explanation of albino killings. Others suspect this is ultimately a story of the cumulative effects of the circulation of rumor and discourse. These contrasting views are woven to tell the story of alleged albino killings while presenting an alternative interpretation, which suggests that Tanzanian elite utilize these rumors to gather social authority and political legitimacy while benefitting from the moral hierarchy of modernity versus tradition.
Caroline Ackley
63
Albino, killings, myths, Tanzania, economics
The First Miss Progress International is Tanzanian
A Tanzanian, Ms. Julieth Lugembe conquered the jury and the whole world at the first edition of Ms.Progress International held in Taranto, Italy. She won on the platform of aiding persons with albinism in her home country.
i-News Wire
Ms. Progress International; Tanzanian; Albino; Pageant; Italy; Human Rights.
i-News Wire. Accessed October 16, 2010.
The Human Rights Case of Persons with Albinism in Uganada
The lives of persons with albinism in Uganda show that "When a group is defined as anything less than human, acts of discrimination become acceptable." Hence prevailing myths that de-humanize persons with albinism has contributed to their suffering, stigmatization and killing. Article highlights the work of Kelly Allen of Beloit College, titled "Oppression Through Omission: The Human Rights Case of Persons with Albinism in Uganda."
Comer, Barry
Albino; Albinism; Uganda.
Conducive Chronicle. Accessed July 28, 2010.
The Meaning of White
A North American mother's story of raising a child with albinism.
Emily Urquhart
North America; albinism;
The Walrus

Contact

Pages

UTSS Latest News

November 16th, 2017
The Perils of Pale
Read National Geographic Magazine's in-depth coverage on the issues facing people with albinism in Tanzania.
October 30th, 2017
How your giving helps
Find out some of the ways your gifts make a difference.
October 26th, 2017
A quick update from UTSS
Read about three important events that we think will interest you.
October 26th, 2017
UTSS call for Tanzanian government to enact laws to provide strong punishment on attackers
Under the Same Sun country representative Vicky Ntetema said attacks on albinos were persisting due to lenient punishment against perpetrators.
October 26th, 2017
Unknown thugs chop off left hand of 75-year-old man with albinism
Mr. Nassor Mohammed, a 75 year old grandpa was attacked by unidentified thugs on Monday October 2, 2017.
October 26th, 2017
Tanzanian police arrest two for kidnapping child with albinism.
Tanzanian police have arrested a Tanzanian citizen and a Kenyan national for abducting a five-year old child with albinism in northern Tanzania’s district of Mwanga.
October 26th, 2017
Cop batters wife over birth of child with albinism
A police officer in Zimbabwe has been arrested following reports of domestic abuse stemming from the birth of a child with albinism.
October 26th, 2017
Killings of PWA in Malawi continues despite the government's intervention
Several persons with albinism in Malawi have come out to talk about their harrowing experiences with merciless body part hunters who are known to sell albino body parts to witch doctors.
October 26th, 2017
New book details the kidnapping of the Muse brothers
The story of two brothers with albinism that were kidnapped from the cotton fields and sold to a freak show in 1899.
June 13th, 2017
We are people too.
Read the Newsweek editorial written by UTSS Founder & CEO, Peter Ash, on his experience as a person with albinism and the persecution that PWA still face in many parts of the world.